screen-shot-2016-09-23-at-09-42-15

A World Without Down’s? Express Article

In the build up to Sally Philips wonderful and thought provoking documentary that asked “A World without Down’s syndrome” and explored the ethics and implications of the introduction of new non invasive testing for Down’s syndrome, I was asked to write a piece for The […]

3 comments
14199611_1088950807851640_4339078361953596108_n

So much to learn….from Seb

We have just returned from our summer holiday. It has been a lovely break for us all, no schedules to follow, days of simple pleasures – swimming, reading, playing cards, chatting, eating and relaxing. Whilst we undoubtedly were able to relax a lot, lot more […]

3 comments
12994497_999184096828312_1421378439322118543_n

WHAT DO YOU SEE?

A few years ago, a headline run by The Independent completely took me aback. It made my heart stop and I felt confused. The paper ran with “M&S to feature disabled boy Seb White in their TV Ad” Disabled?? DISABLED boy?? Whaaat? The headline made […]

4 comments
12805889_973036192776436_8720475631794905271_n

PROUDEST MUM ON EARTH…

I have officially burst. Here is the examiner’s report on Seb’s reading at the Midsomerset Festival. “Thank you so much for sharing your reading with us today.  What a clever boy!  We could hear every word and you are to be congratulated on your performance. […]

1 comment
12803175_972557592824296_3634960297750216910_n

WHAT A DAY! MIND BLOWN….

A few weeks ago we had a letter home from school about the Midsomerset festival. It is a speech, drama, music and singing festival open to all schools in the local area. There are set syllabuses for each category and age. As I so often […]

2 comments
1929656_10713366254_3193_n

A beam of light…

The last few posts I have written and shared have been somewhat hopeless. I have been feeling an anxiety I have never known before. Defeatist too. The testing has hit us all – not the testing itself, when you really think about it it’s no […]

4 comments
12552718_948763815203674_5775406822874459225_n

More than a feeling….

My heart is broken right now. We’ve known about the #NIPT testing for ages and my life hasn’t changed at all. I still have my own family unit that I wouldn’t change for anything, the world is still turning and it doesn’t actually affect me […]

Leave a comment