I was invited to appear on Channel 4 to speak about the potential implications of the new testing for Down’s. It was massively last minute and I arrived, straight from work and school pick up, at the train station with the clothes I had been […]
Month: November 2015

He’s Not a List of Characteristics….He’s My Son – Guardian October 2015
We were delighted to be involved in this wonderful piece written by journalist Olivia Kaye. It is wonderfully balanced and true to our words. Thank you Olivia and The Guardian and the other advocates involved. The full piece is here: http://www.theguardian.com/society/2015/oct/17/living-with-downs-syndrome-hes-not-list-characteristics

Seb, I’m sorry………
The Timehop / Memories apps are a nice touch. I’ve been on FB a long time and it often chucks up pictures and memories I had long forgotten, or even deleted. Photos and conversations from the past that often make me smile. But one just […]

Film Night…..
Every year our school PTA puts on a film night. The kids put on their pyjamas, bring a teddy and a pillow, and turn up after school to watch a film and eat treats with their friends. It is a really sweet and special evening […]

TESTING FOR DOWN’S – WHY DO I EVEN CARE?
Unless you have been living in a cave with no wifi access for the last few years, you will have heard all about the new prenatal testing for Down’s syndrome. Hailed as a modern medical miracle, the fact it is non-invasive ultimately means less “healthy” […]