My “little” brother…. After a fabulous and, dare i say it, easy start back to school last week we seem to have hit a few challenges in our second week with Seb. By contrast his little brother has breezed in and out with complete ease. […]
All posts filed under: down syndrome
MY FERAL HEART – “A FILM ABOUT ABILITY, NOT DISABILITY”, by DUNCAN PAVELING
Whilst I am not an advocate of the line “everything happens for a reason” I certainly believe that everything thrown at us shapes, moulds and influences who we are – and there is no doubt that life guides us down certain paths and chance meetings […]
Loose Women
Seb and I were invited on to speak to the Loose Women panel on Wednesday 10th June. The whole invitation came about after a thank you note I posted on TK Maxx’s website went viral. The interview felt like a car crash at the time, […]
INCLUSION – A Devastating Irony
NCLUSION – A Devastating Irony We have spent the start of the Easter holidays doing the same typical things of families everywhere. We’ve travelled to grandparents, been to watch the football, a trip to the seaside, eaten well and scoffed lots of treats. The kids […]
“MY FERAL HEART” – Tiny Teaser (and ketchup for breakfast)
We have a running joke in our house that if Seb *could* have ketchup for breakfast, he would. Well, today he did….and chips….. This morning we had the absolute pleasure of meeting writer and filmmaker Duncan Pavelling, in my home town in Essex. A chance […]
From the Asylum to the Palladium – The Music Man Project
Seb and I spent a wonderful afternoon yesterday with David Stanley, Founder and Director of the MusicMan Project, and Jenny Hitchcock, the project’s Regional Director. Based in the place I still call “home”, The Music Man Project is run by Southend Mencap and Seb and […]
Graffiti on His Precious Book
It’s just a few scribbles but the words and the handwriting from Seb’s little red book are indelibly stamped in my memory. I stared at them so many times and for so long. Graffiti on his precious notes. Holding my breath so as not to […]
The Elephant in the Room…..
*ahem* can we just have a quick chat about that elephant in the room…. Welcome to World Down Syndrome Week, which leads us to #WDSD on Saturday. It is a fantastic opportunity for the world to pull together and spread up to date and accurate […]
Then…….
I am sitting here on the eve of Seb’s birthday, his 7th birthday. Somehow in my head he is still 4 and his brother is 2 – for no other reason than I cannot believe he has been earthside for 7 whole years. And I […]
There’s A Silver Lining?
Yesterday the skies were blue and there was a definite promise of spring in the air. As the start of half term, Seb’s birthday on the way and the unavoidable knowledge that it was valentines day, we decided to spend the day in our beautiful […]
About A Boy
Seb’s birthday is just two days after Valentine’s Day and the rather brash and inescapable arrival of redness across the land serves as a reminder that another milestone is just around the corner. At this time of year it is impossible for me not to […]
Reflections at Sunset over Four Decades
I really envy all those people who view age as ‘just a number’. I have always known I would hate getting ‘old’. Even as a really small child of about 7 I used to be thankful for my youth. I can remember being in my […]
Force of Nature 