We have just returned from our summer holiday. It has been a lovely break for us all, no schedules to follow, days of simple pleasures – swimming, reading, playing cards, chatting, eating and relaxing. Whilst we undoubtedly were able to relax a lot, lot more […]
I am sitting here on the eve of Seb’s birthday, his 7th birthday. Somehow in my head he is still 4 and his brother is 2 – for no other reason than I cannot believe he has been earthside for 7 whole years. And I […]
LITTLE PEOPLE SEE A PERSON, NOT A SYNDROME This is Seb and Ella, aged 4. They have known each since birth and they are second cousins. Ella’s mum and I were pregnant at the same time and the children are a couple of months apart. […]
“GOD, I LOVE THIS KID!” – The Hoff As we took our front row seats at the panto this evening I said to my mum “if we get through this unnoticed I’ll be amazed”…… My mum tried to get us all tickets for the panto […]
Barely a week, or even day, goes by when we are not somehow reminded how our lives are so much richer for having Seb in it. Something I could never have anticipated before he was born, or even when we were first told of his […]
WHAT ARE YOU STARING AT? Today I had one of those moments that creep up on you from nowhere. You know, when you are going about your usual business but you catch your breath as you realise how grown up your child suddenly looks. A […]
It is an overblown cliche that people with Down’s syndrome are “loving and giving”. If I had a pound for every well meaning person who has said that to me, I’d be living in a bigger house with a bigger kitchen. Maybe even a driveway. […]
This morning at school drop off something happened that made my heart swell and almost burst out of my chest with pride. It was a really small thing, something that most people would have barely noticed, but for me it was a BIG deal. I […]
