This afternoon whilst we were serving up dinner we improvised with a game of “guess what I am?” which basically involved doing an impression of something for everyone to guess. We had a pig, an elephant, a monkey and a police car amongst other things. […]
We have just had a very emotional visit to Seb’s great grandma. At 99 (and a half!), we are never sure how we will find her and her health has markedly deteriorated in the last year. This year is the first year she will […]
I was invited to appear on Channel 4 to speak about the potential implications of the new testing for Down’s. It was massively last minute and I arrived, straight from work and school pick up, at the train station with the clothes I had been […]
We were delighted to be involved in this wonderful piece written by journalist Olivia Kaye. It is wonderfully balanced and true to our words. Thank you Olivia and The Guardian and the other advocates involved. The full piece is here: http://www.theguardian.com/society/2015/oct/17/living-with-downs-syndrome-hes-not-list-characteristics
The Timehop / Memories apps are a nice touch. I’ve been on FB a long time and it often chucks up pictures and memories I had long forgotten, or even deleted. Photos and conversations from the past that often make me smile. But one just […]
Every year our school PTA puts on a film night. The kids put on their pyjamas, bring a teddy and a pillow, and turn up after school to watch a film and eat treats with their friends. It is a really sweet and special evening […]
Unless you have been living in a cave with no wifi access for the last few years, you will have heard all about the new prenatal testing for Down’s syndrome. Hailed as a modern medical miracle, the fact it is non-invasive ultimately means less “healthy” […]
Seb and I were invited on to speak to the Loose Women panel on Wednesday 10th June. The whole invitation came about after a thank you note I posted on TK Maxx’s website went viral. The interview felt like a car crash at the time, […]
It’s just a few scribbles but the words and the handwriting from Seb’s little red book are indelibly stamped in my memory. I stared at them so many times and for so long. Graffiti on his precious notes. Holding my breath so as not to […]
Yesterday the skies were blue and there was a definite promise of spring in the air. As the start of half term, Seb’s birthday on the way and the unavoidable knowledge that it was valentines day, we decided to spend the day in our beautiful […]
Seb’s birthday is just two days after Valentine’s Day and the rather brash and inescapable arrival of redness across the land serves as a reminder that another milestone is just around the corner. At this time of year it is impossible for me not to […]
I really envy all those people who view age as ‘just a number’. I have always known I would hate getting ‘old’. Even as a really small child of about 7 I used to be thankful for my youth. I can remember being in my […]
Force of Nature 