We have just returned from our summer holiday. It has been a lovely break for us all, no schedules to follow, days of simple pleasures – swimming, reading, playing cards, chatting, eating and relaxing. Whilst we undoubtedly were able to relax a lot, lot more […]
All posts tagged: attitudes

More than a feeling….
My heart is broken right now. We’ve known about the #NIPT testing for ages and my life hasn’t changed at all. I still have my own family unit that I wouldn’t change for anything, the world is still turning and it doesn’t actually affect me […]

The no biggie biggie
I’ve seen Seb’s face / photo in some pretty awesome places over the last few years. But this one is by far the best. This isn’t the front page of a broadsheet, or a packet of chocolate. This isn’t the reception of a high street […]

Seb, I’m sorry………
The Timehop / Memories apps are a nice touch. I’ve been on FB a long time and it often chucks up pictures and memories I had long forgotten, or even deleted. Photos and conversations from the past that often make me smile. But one just […]

MY FERAL HEART – “A FILM ABOUT ABILITY, NOT DISABILITY”, by DUNCAN PAVELING
Whilst I am not an advocate of the line “everything happens for a reason” I certainly believe that everything thrown at us shapes, moulds and influences who we are – and there is no doubt that life guides us down certain paths and chance meetings […]

Loose Women
Seb and I were invited on to speak to the Loose Women panel on Wednesday 10th June. The whole invitation came about after a thank you note I posted on TK Maxx’s website went viral. The interview felt like a car crash at the time, […]

INCLUSION – A Devastating Irony
NCLUSION – A Devastating Irony We have spent the start of the Easter holidays doing the same typical things of families everywhere. We’ve travelled to grandparents, been to watch the football, a trip to the seaside, eaten well and scoffed lots of treats. The kids […]

“MY FERAL HEART” – Tiny Teaser (and ketchup for breakfast)
We have a running joke in our house that if Seb *could* have ketchup for breakfast, he would. Well, today he did….and chips….. This morning we had the absolute pleasure of meeting writer and filmmaker Duncan Pavelling, in my home town in Essex. A chance […]

From the Asylum to the Palladium – The Music Man Project
Seb and I spent a wonderful afternoon yesterday with David Stanley, Founder and Director of the MusicMan Project, and Jenny Hitchcock, the project’s Regional Director. Based in the place I still call “home”, The Music Man Project is run by Southend Mencap and Seb and […]

Graffiti on His Precious Book
It’s just a few scribbles but the words and the handwriting from Seb’s little red book are indelibly stamped in my memory. I stared at them so many times and for so long. Graffiti on his precious notes. Holding my breath so as not to […]

Then…….
I am sitting here on the eve of Seb’s birthday, his 7th birthday. Somehow in my head he is still 4 and his brother is 2 – for no other reason than I cannot believe he has been earthside for 7 whole years. And I […]

There’s A Silver Lining?
Yesterday the skies were blue and there was a definite promise of spring in the air. As the start of half term, Seb’s birthday on the way and the unavoidable knowledge that it was valentines day, we decided to spend the day in our beautiful […]