We have just returned from our summer holiday. It has been a lovely break for us all, no schedules to follow, days of simple pleasures – swimming, reading, playing cards, chatting, eating and relaxing. Whilst we undoubtedly were able to relax a lot, lot more […]
All posts tagged: family
More than a feeling….
My heart is broken right now. We’ve known about the #NIPT testing for ages and my life hasn’t changed at all. I still have my own family unit that I wouldn’t change for anything, the world is still turning and it doesn’t actually affect me […]
The no biggie biggie
I’ve seen Seb’s face / photo in some pretty awesome places over the last few years. But this one is by far the best. This isn’t the front page of a broadsheet, or a packet of chocolate. This isn’t the reception of a high street […]
What does the word “debilitating” conjure up to you? To me, it is a profoundly frail and sick person, unable to do pretty much anything. In my minds eye I imagine someone lying on the floor, or in a bed, desperate for help, pale in […]
Woken feeling really blue. I am fighting a wobbly lip, I have an upset tummy and my heart feels heavy. It’s a feeling similar to when we were given seb’s diagnosis. I want to scoop him in my arms and run away somewhere. Somewhere safe. […]
So often we talk about “balance”. “I am pro-choice, as long as decisions are based on “balanced” information”. Giving the WHOLE picture. Except, more often than not, us parents of children with Downs syndrome really just want to counter balance the harsh scientific and medical […]
AND THE STARS LOOK VERY DIFFERENT TODAY….
The passing of British pop icon David Bowie has shocked and impacted just about every adult I know. His death was seemingly out of nowhere, even though those closest to him obviously knew it was coming, and it just felt like David Bowie was someone […]
He’s Not a List of Characteristics….He’s My Son – Guardian October 2015
We were delighted to be involved in this wonderful piece written by journalist Olivia Kaye. It is wonderfully balanced and true to our words. Thank you Olivia and The Guardian and the other advocates involved. The full piece is here: http://www.theguardian.com/society/2015/oct/17/living-with-downs-syndrome-hes-not-list-characteristics
TESTING FOR DOWN’S – WHY DO I EVEN CARE?
Unless you have been living in a cave with no wifi access for the last few years, you will have heard all about the new prenatal testing for Down’s syndrome. Hailed as a modern medical miracle, the fact it is non-invasive ultimately means less “healthy” […]
Seb has made me cry today. Twice.
Seb has made me cry today. Twice. The first time was this morning at school drop off. What should, in theory, now be an easy thing has turned into a bit of a headache as Seb is very reluctant to go into his class knowing […]
My “little” Brother
My “little” brother…. After a fabulous and, dare i say it, easy start back to school last week we seem to have hit a few challenges in our second week with Seb. By contrast his little brother has breezed in and out with complete ease. […]
Seb and I were invited on to speak to the Loose Women panel on Wednesday 10th June. The whole invitation came about after a thank you note I posted on TK Maxx’s website went viral. The interview felt like a car crash at the time, […]