It’s just a few scribbles but the words and the handwriting from Seb’s little red book are indelibly stamped in my memory. I stared at them so many times and for so long. Graffiti on his precious notes. Holding my breath so as not to […]
All posts tagged: inclusion
I am sitting here on the eve of Seb’s birthday, his 7th birthday. Somehow in my head he is still 4 and his brother is 2 – for no other reason than I cannot believe he has been earthside for 7 whole years. And I […]
About A Boy
Seb’s birthday is just two days after Valentine’s Day and the rather brash and inescapable arrival of redness across the land serves as a reminder that another milestone is just around the corner. At this time of year it is impossible for me not to […]
Reflections at Sunset over Four Decades
I really envy all those people who view age as ‘just a number’. I have always known I would hate getting ‘old’. Even as a really small child of about 7 I used to be thankful for my youth. I can remember being in my […]
Little People see a Person, not a Syndrome
LITTLE PEOPLE SEE A PERSON, NOT A SYNDROME This is Seb and Ella, aged 4. They have known each since birth and they are second cousins. Ella’s mum and I were pregnant at the same time and the children are a couple of months apart. […]
And This is the One I Worry About….
AND THIS IS THE ONE I WORRY ABOUT….. LITERALLY just the other night I was at a friend’s house enjoying a lovely festive evening of drinks and nibbles and chatting with some other mums. We all talked about our kids in various forms. They all […]
“God I Love This Kid!” – The Hoff
“GOD, I LOVE THIS KID!” – The Hoff As we took our front row seats at the panto this evening I said to my mum “if we get through this unnoticed I’ll be amazed”…… My mum tried to get us all tickets for the panto […]
Making Waves with the Gentle Ripples of Inclusion
MAKING WAVES WITH THE GENTLE RIPPLES OF INCLUSION MAKING WAVES WITH THE GENTLE RIPPLES OF INCLUSION….. It doesn’t take a genius to work out that something whisked away and hidden is something feared. Especially if nobody knows anything about it and it has a big, […]
A New and Very Unexpected Heartbreak
A NEW AND VERY UNEXPECTED HEARTBREAK I think it is a very natural thing, as a parent, to worry. It seems particularly true of us females. I hate to make generalisations, but from conversations I have had with other mums, it tends to be the […]
No Cry, Mummy…..
NO CRY, MUMMY! It is an emotional moment for any parent when their child achieves something monumental. When you have spent day after day, month after month – even years – watching your child tirelessly try and try and try again with a steely determination […]
My Greatest Teacher
Barely a week, or even day, goes by when we are not somehow reminded how our lives are so much richer for having Seb in it. Something I could never have anticipated before he was born, or even when we were first told of his […]
Quick Maths Test
QUICK MATHS TEST My sister has 46 chromosomes. i have 47. All from our mum and dad. Does my one extra chromosome make me like her or like everyone else with Down’s syndrome?