My heart is broken right now. We’ve known about the #NIPT testing for ages and my life hasn’t changed at all. I still have my own family unit that I wouldn’t change for anything, the world is still turning and it doesn’t actually affect me […]
All posts tagged: mum

Then…….
I am sitting here on the eve of Seb’s birthday, his 7th birthday. Somehow in my head he is still 4 and his brother is 2 – for no other reason than I cannot believe he has been earthside for 7 whole years. And I […]

About A Boy
Seb’s birthday is just two days after Valentine’s Day and the rather brash and inescapable arrival of redness across the land serves as a reminder that another milestone is just around the corner. At this time of year it is impossible for me not to […]

Reflections at Sunset over Four Decades
I really envy all those people who view age as ‘just a number’. I have always known I would hate getting ‘old’. Even as a really small child of about 7 I used to be thankful for my youth. I can remember being in my […]

And This is the One I Worry About….
AND THIS IS THE ONE I WORRY ABOUT….. LITERALLY just the other night I was at a friend’s house enjoying a lovely festive evening of drinks and nibbles and chatting with some other mums. We all talked about our kids in various forms. They all […]

“God I Love This Kid!” – The Hoff
“GOD, I LOVE THIS KID!” – The Hoff As we took our front row seats at the panto this evening I said to my mum “if we get through this unnoticed I’ll be amazed”…… My mum tried to get us all tickets for the panto […]

Making Waves with the Gentle Ripples of Inclusion
MAKING WAVES WITH THE GENTLE RIPPLES OF INCLUSION MAKING WAVES WITH THE GENTLE RIPPLES OF INCLUSION….. It doesn’t take a genius to work out that something whisked away and hidden is something feared. Especially if nobody knows anything about it and it has a big, […]

A New and Very Unexpected Heartbreak
A NEW AND VERY UNEXPECTED HEARTBREAK I think it is a very natural thing, as a parent, to worry. It seems particularly true of us females. I hate to make generalisations, but from conversations I have had with other mums, it tends to be the […]

Quick Maths Test
QUICK MATHS TEST My sister has 46 chromosomes. i have 47. All from our mum and dad. Does my one extra chromosome make me like her or like everyone else with Down’s syndrome?

What Are You Staring At?
WHAT ARE YOU STARING AT? Today I had one of those moments that creep up on you from nowhere. You know, when you are going about your usual business but you catch your breath as you realise how grown up your child suddenly looks. A […]

Loving and Giving?
It is an overblown cliche that people with Down’s syndrome are “loving and giving”. If I had a pound for every well meaning person who has said that to me, I’d be living in a bigger house with a bigger kitchen. Maybe even a driveway. […]

Perspective
This morning at school drop off something happened that made my heart swell and almost burst out of my chest with pride. It was a really small thing, something that most people would have barely noticed, but for me it was a BIG deal. I […]