We have just returned from our summer holiday. It has been a lovely break for us all, no schedules to follow, days of simple pleasures – swimming, reading, playing cards, chatting, eating and relaxing. Whilst we undoubtedly were able to relax a lot, lot more […]
A few years ago, a headline run by The Independent completely took me aback. It made my heart stop and I felt confused. The paper ran with “M&S to feature disabled boy Seb White in their TV Ad” Disabled?? DISABLED boy?? Whaaat? The headline made […]
Woken feeling really blue. I am fighting a wobbly lip, I have an upset tummy and my heart feels heavy. It’s a feeling similar to when we were given seb’s diagnosis. I want to scoop him in my arms and run away somewhere. Somewhere safe. […]
So often we talk about “balance”. “I am pro-choice, as long as decisions are based on “balanced” information”. Giving the WHOLE picture. Except, more often than not, us parents of children with Downs syndrome really just want to counter balance the harsh scientific and medical […]
The passing of British pop icon David Bowie has shocked and impacted just about every adult I know. His death was seemingly out of nowhere, even though those closest to him obviously knew it was coming, and it just felt like David Bowie was someone […]
This afternoon whilst we were serving up dinner we improvised with a game of “guess what I am?” which basically involved doing an impression of something for everyone to guess. We had a pig, an elephant, a monkey and a police car amongst other things. […]
Seb has made me cry today. Twice. The first time was this morning at school drop off. What should, in theory, now be an easy thing has turned into a bit of a headache as Seb is very reluctant to go into his class knowing […]
My “little” brother…. After a fabulous and, dare i say it, easy start back to school last week we seem to have hit a few challenges in our second week with Seb. By contrast his little brother has breezed in and out with complete ease. […]
I am sitting here on the eve of Seb’s birthday, his 7th birthday. Somehow in my head he is still 4 and his brother is 2 – for no other reason than I cannot believe he has been earthside for 7 whole years. And I […]
Seb’s birthday is just two days after Valentine’s Day and the rather brash and inescapable arrival of redness across the land serves as a reminder that another milestone is just around the corner. At this time of year it is impossible for me not to […]
LITTLE PEOPLE SEE A PERSON, NOT A SYNDROME This is Seb and Ella, aged 4. They have known each since birth and they are second cousins. Ella’s mum and I were pregnant at the same time and the children are a couple of months apart. […]
AND THIS IS THE ONE I WORRY ABOUT….. LITERALLY just the other night I was at a friend’s house enjoying a lovely festive evening of drinks and nibbles and chatting with some other mums. We all talked about our kids in various forms. They all […]
Force of Nature 