We have just returned from our summer holiday. It has been a lovely break for us all, no schedules to follow, days of simple pleasures – swimming, reading, playing cards, chatting, eating and relaxing. Whilst we undoubtedly were able to relax a lot, lot more […]
My heart is broken right now. We’ve known about the #NIPT testing for ages and my life hasn’t changed at all. I still have my own family unit that I wouldn’t change for anything, the world is still turning and it doesn’t actually affect me […]
*ahem* can we just have a quick chat about that elephant in the room…. Welcome to World Down Syndrome Week, which leads us to #WDSD on Saturday. It is a fantastic opportunity for the world to pull together and spread up to date and accurate […]
I am sitting here on the eve of Seb’s birthday, his 7th birthday. Somehow in my head he is still 4 and his brother is 2 – for no other reason than I cannot believe he has been earthside for 7 whole years. And I […]
“GOD, I LOVE THIS KID!” – The Hoff As we took our front row seats at the panto this evening I said to my mum “if we get through this unnoticed I’ll be amazed”…… My mum tried to get us all tickets for the panto […]
WHAT ARE YOU STARING AT? Today I had one of those moments that creep up on you from nowhere. You know, when you are going about your usual business but you catch your breath as you realise how grown up your child suddenly looks. A […]
It is an overblown cliche that people with Down’s syndrome are “loving and giving”. If I had a pound for every well meaning person who has said that to me, I’d be living in a bigger house with a bigger kitchen. Maybe even a driveway. […]
STILL LEARNING A couple of days ago I was holding my baby daughter in my arms and something happened that literally took my breath away. I glanced down at her and was struck by how much she looked like her oldest brother. It could have […]
WHAT WAS I THINKING? Last night as I got the children out of the bath and made my way into my bedroom to get them dressed, I had a bit of a moan at Seb who had found a box under my bed and scattered […]
DIAGNOSIS DOWN’S This is the first blog I ever wrote. It was initially for friends and family on Facebook and was my contribution to Down’s Syndrome Awareness Week in March 2011. Of course, 3 years later and it would be written with even more love […]
FORCE OF NATURE It is estimated that at least 80% of foetuses with Down’s syndrome are miscarried or stillborn. This figure could be even higher as most miscarriages are not analysed. I remember our genetic counsellor explaining how a pregnant mother’s body is like a spell […]
Force of Nature 